Yehor is 10 years old and has been undergoing treatment almost all his life. At first, doctors made incorrect diagnoses and prescribed the wrong treatment, which harmed the boy's health. Only after a full expensive examination by a metabolic geneticist at the age of 6, Yegor was given an accurate diagnosis with treatment protocols and at the age of 7 the child started speaking! There are many diagnoses, but the main one is the orphan disease Tessadori-Bicknell-van Haaften neurodevelopmental syndrome 3.
Now Yehor has finished the 3rd grade. To learn how to pronounce words correctly and build sentences, he attended classes with a speech therapist after school.
Due to the sensory overload in the team, Yegor was very tired, his nervous system could not stand it, and sessions with a psychologist help him to balance.
In December 2024, at the end of the third year of his studies, Yegor's health deteriorated and he was sent for a year of rehabilitation from the state, and Tourette's syndrome started. Now the child does not want to be among people because of the twitching of his head and feels great discomfort. Currently, he takes sedatives every day and continues to be examined.
Yehor is not allowed to play sports, so the pool is the best option, but the boy is afraid of water.
The Foundation paid for an intensive rehabilitation course for Yegor and it gave impressive results
We share the message that his mother sent:
"Rehabilitation:
Classes with a speech therapist - Egorushka has confused speech, chews words, almost does not understand what he is saying - the speech therapist during the rehabilitation "put" the letters R, G, C, S, Sh, L. During this rehabilitation, the speech therapist systematized these letters for the son in everyday life. This had never happened before! All the lessons were held with a neuropsychological approach, in the form of a game - the son was happy to work with the speech therapist!
Defectologist - the son of
learned to pronounce 4 coherent words in one sentence, feels the rhythm and emphasis of the word in the reading. Now it is possible to understand what exactly the child said. Previously, we used to ask him to write on the board what he wanted to say to us when he babbled.
Sensory integration is a mega class we had thanks to the Bonum Ukraine Foundation!
The Sensory Integration Method is one of the newest comprehensive therapeutic methods used for children with psychomotor delays, speech disorders and learning disabilities. Sensory integration is the organization of incoming sensory data through the brain in order to “produce” a response.
Examples from my son's classes, where the miracle coach Victoria taught the skills we had been working on for years.
My son has overcome his fear and can crawl through a narrow tunnel completely covered with elastic fabric. I should note that my son cannot touch clothes made of elastic, synthetics, etc. since he was a baby.
He learned how to kick a soccer ball. Before that, with 14 rehabilitations behind him, he had no such skill.
He learned how to jump rope - before that, his neurons did not work in concert and the child could not perform this simple exercise/game.
In general, the child's sensory integration has improved his coordination of movements, developed motor skills and improved psychomotor skills, contributed to the development of attention and concentration, improved speech and communication skills, helped to cope with hyperactivity and lack of attention, increased self-esteem and confidence!
The psychologist has become his son's best friend and interlocutor. Yegorushka told us about his school fears"
These are impressive results and we are happy that with our little help the child achieved them!
Thank you to those who care for the help in Yegor's rehabilitation!
Thank you for helping children, your donations save the lives and health of little Ukrainians.
The donation amount is non-refundable, and the funds are distributed among the foundation's projects
Contact us if you have questions or inquiries
BonumForUkraine@gmail.com
Zaliznychne shose, 57, Kyiv
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